Week One Update & Thanksgiving
I promised myself that when I started this blog I would be real and raw so bear with me...
The last week has been the longest week of our life. Some days are good and some days are just plain terrible. We know that we were chosen to be Jack's parents, but that still doesn't take away the sadness and the emotional roller coaster we are on. Sometimes we are mad, confused and ask why more often than we care to admit. We are so tired as well, but Kyle has been such an awesome daddy helping me when I am too tired to do something. Although we feel these emotions, we are thankful that Jack is alive and that his heart is healthy and he is breathing on his own.
I am really happy to report that I am able to provide Jack with my own milk supply, which is such a blessing for both him and me. As his mommy, I feel like I am truly contributing to his growth and health. The not so great news is that he is still being fed through a feeding tube and not taking a bottle at this time. The nurses, OTs and doctors are worried about how he is swallowing and want to be sure he does not aspirate so for now bottles are out of the question :-(.
Tomorrow, 11/28, Jack is undergoing a swallow study to see where the milk is going when he swallows it. Our hope is that the test will show that the milk will go down the right pipe and into his stomach. The opposite and negative outcome is that the milk will go down the wrong pipe. This can lead to choking in the future and obviously this is a huge risk. As adults when this happens we are able to cough it out, but Jack is unable to do that at this time. We ask for all of our prayer warriors to pray that this test goes as well as it possibly can because this will determine his feeding habits in the future. It would be so freaking amazing if he could both breast feed and bottle feed in the future!
This week was also hard since our sweet Jack was not home with us for Thanksgiving. We are so thankful for him though and got to spend a good amount of time with him that day. Mommy also made sure he was dressed for the day - check out his Gobble 'Til You Wobble onesie! His sweet nurses and volunteers also created his first piece of art using his foot print. I absolutely teared up when I saw it!
The last week has been the longest week of our life. Some days are good and some days are just plain terrible. We know that we were chosen to be Jack's parents, but that still doesn't take away the sadness and the emotional roller coaster we are on. Sometimes we are mad, confused and ask why more often than we care to admit. We are so tired as well, but Kyle has been such an awesome daddy helping me when I am too tired to do something. Although we feel these emotions, we are thankful that Jack is alive and that his heart is healthy and he is breathing on his own.
I am really happy to report that I am able to provide Jack with my own milk supply, which is such a blessing for both him and me. As his mommy, I feel like I am truly contributing to his growth and health. The not so great news is that he is still being fed through a feeding tube and not taking a bottle at this time. The nurses, OTs and doctors are worried about how he is swallowing and want to be sure he does not aspirate so for now bottles are out of the question :-(.
Tomorrow, 11/28, Jack is undergoing a swallow study to see where the milk is going when he swallows it. Our hope is that the test will show that the milk will go down the right pipe and into his stomach. The opposite and negative outcome is that the milk will go down the wrong pipe. This can lead to choking in the future and obviously this is a huge risk. As adults when this happens we are able to cough it out, but Jack is unable to do that at this time. We ask for all of our prayer warriors to pray that this test goes as well as it possibly can because this will determine his feeding habits in the future. It would be so freaking amazing if he could both breast feed and bottle feed in the future!
This week was also hard since our sweet Jack was not home with us for Thanksgiving. We are so thankful for him though and got to spend a good amount of time with him that day. Mommy also made sure he was dressed for the day - check out his Gobble 'Til You Wobble onesie! His sweet nurses and volunteers also created his first piece of art using his foot print. I absolutely teared up when I saw it!
Jack started to gain some weight so we are very happy about that. He is not yet to his birth weight, but we hope he will get there soon. Our sweet boy is already changing so much in just a weeks time. I really think he is looking more like his daddy every day, which makes my heart swoon!
We are so thankful for all of your prayers - we feel every single one of them. If you feel inclined to continue to pray we would be so very grateful!
Kyle and I would like to leave y'all with this: hug your family and children tight and tell them you love them because you never know what tomorrow will bring.
We love y'all - Kyle & Paige
Behold, I have inscribed you on the palms of my hands; Your walls are continually before me.
Isaiah 49:16
Good morning, Paige and family. Your faith is awesome. This life is short and you are fighting the good fight with vigor and LOVE! Your SWA family stands with you. I am believing with you for strength for each day, walking by faith and not by site and for a miracle for Jack. Love, Autumn
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